Norwich toddler Miles Waterman was just a newborn when he was diagnosed with a heart condition.
In October 2019, when the tot was aged two-weeks old, doctors discovered he had dilated cardiomyopathy and heart failure.
Now, aged three, his condition has led to complications throughout his short life.
Despite this, he remains “a happy, bubbly little boy”, his mum explained.
Georgia Williams, of Old Catton, said she had no idea anything was wrong during the first fortnight of her son’s life.
After a night of poor feeding and drowsiness, Mrs Williams and her husband Brandon, 36, decided to take him to the doctors.
Here they were forced to make an emergency dash to the Norfolk and Norwich hospital, before Miles was blue-lighted to the intensive care unit at London’s Great Ormond Street Hospital (Gosh).
During their time at Gosh, the family were introduced to East Anglia’s Children’s Hospice (Each).
Mrs Williams, 34, said: “His condition means that the left side of his heart is oversized, therefore it doesn’t effectively pump blood and oxygen around his body.
“Although not much can ease the journey we’ve been on as a family, Each has been a huge support during some of the toughest times we’ve faced.
“Everyone I’ve spoken to has been incredibly supportive and so willing to help in any way they can.”
The family continues to receive support from Each at its facility The Nook in Framlingham Earl near Norwich.
Now, as a way of saying thank you, Mrs Williams, who works in recruitment, has signed up for the charity’s 32-mile Pier 2 Pier walk along the Norfolk coast on June 10.
“I’ve never done a challenge like this before,” she said.
“I’m sure we’ll be channelling Miles’ strength throughout the tougher moments of the 32 miles.”
She will be walking with her brother and godmother.
- Visit https://eastangliaschildrenshospices.enthuse.com/pf/georgia-williams to donate.
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